Showing posts with label #Fundraising. Show all posts
Showing posts with label #Fundraising. Show all posts

Sunday, October 16, 2022

 Another day gone by. Determined to do more, but keep putting things off. Gets frustrating as I know my time here is limited. There will be lots of regrets eventually.

Trying to push things forward, have great hope for the Exeter Respiratory Innovation centre http://eri.org.uk. #eri. It will however require a lot of work. We need a pathway for new projects, and a continuing conversation with all respiratory departments in the regional hospitals.

The web-site is available, just needs maintaining with new information as it comes in.

There needs to be a small group to verify and validate projects before they get added to the web-site.

Friday, February 14, 2020

Possibly overdoing it..

Choral Diversity, a choir in the Hereford area which rehearses at Leominster Golf Club had a concert in Hereford, and raised £5745 for Action for Pulmonary Fibrosis.

I had the pleasure and honour to meet them to pick up the cheque. It was a long drive but well worth it.

Listened to part of their choir practice.

My granddaughter Molly is home from University ill. Fever and cough. Quite poorly.

Yesterday, before I drove up to Hereford, I waited in for my Oxygen equipment to be serviced. Today, I waited in for my Pirfenidone delivery. I was glad of the chance to sit and doze for a few hours, although I could have done with staying in bed.

I really must slow down.

I feel a lot better, but when I start coughing I get sick, and giddy. Really not good when I'm driving. It's a really weird feeling, feels like my vision does a 'freeze frame', and I sort of lose consciousness. I always stop when I feel this coming on.

There's a paper with my name on being submitted for publication in the Lancet. That'll make two in the Lancet - Yay. All about how short Telomeres can be a cause of PF - which could lead to a test at an early stage, before symptoms become apparent.

Added to this there is a second study just published which indicates that first degree relatives of IPF patients have a 30% chance of getting IPF themselves - and if this could be detected through the test for short Telomeres - could be a game changer.

Looking forward now to another weekend chilling out, doing nothing.